CMT Tricks for CMT Month

My Charcot-Marie-Tooth symptoms have been present since toddlerhood. Therefore, I have instinctively developed little “tricks” in my daily life to cope with my limitations. When my CMT Clicks buds and I discussed writing about our little coping mechanisms, it forced me to take a real step back and evaluate my daily routine to figure out what I do differently than the average person. It was a great challenge and a real eye opener about how much of a role CMT plays in my life without me really realizing it.

Clothes.
I never, ever buy a garment with buttons. If I do, the buttons must be large enough for my tremory hands to grasp and have a button hole large enough for me to swiftly maneuver through.

Hair.
I can’t blow dry my hair. My arms tire easily and holding a blowdryer with one hand and a brush in the other, simultaneously, is just too exhausting. Life is too short to wear myself out before the day even begins. So I use a bit of straightening product, run a brush through and done. My hair style has always been of the wash n’ wear variety.

Food.
No joke – my Dad cut my meat until I left for university. Not wanting to have to ask for help in the university cafeteria, an occupational therapist suggested a rocker knife. Rocker knives are awesome as you have control and can apply downward pressure to make the cut.
Also in the food category, I instinctively do not order certain things when eating in a restaurant. Rice is one. Gathering little pieces of rice onto a fork is tricky and always leaves a mess on my placemat (and sometimes on my lap.) Rather than having the wait staff and fellow diners think that I have the eating habits of a toddler, I just steer clear of anything small that is hard to ply onto a fork.

 My Day.


My job is not a physically stressful one. And my day is pretty structured. But weekends are a different story.
The big task/event for the day is almost always planned for the morning. That is when I have the most energy. And as the day progresses, I always think ahead and plan breaks or less strenuous activities to allow my body to recoup.

My spouse

.

My first real boyfriend recoiled when he smelled Rub A535 (a cream for joint pain relief) on me. I should have known right then and there that he was not the guy for me.
J. is *the* guy for me…for a myriad of reasons. But the CMT reasons include, but are not limited to: waking up in the middle of the night and rubbing out a leg cramp, doing all household manual labour, grating the callouses off the bottom of my feet, clipping my toenails, and putting together a foot bath for me.
How did I know J. *was* the guy who was in this CMT-thing for the long haul? About 6 months after we started dating I needed hand surgery. He practically moved me into his dorm room and took care of everything I needed…including shaving my armpits. A guy who will shave your armpits is a keeper.

 

city sunrise photo courtesy of: Photo credit: karencastens from morguefile.com

but I love you photo courtesy of: Photo credit: clarita from morguefile.com

2 comments on “CMT Tricks for CMT Month

  1. on September 14, 2012
    michelle says:

    Ahhh – J does all the things for you that I still hide in a locked bathroom to do!!! That’s love!
    I LOVE that pic of the city – nice shot!
    Also, I’ll be over at noon to organize your clothes by colour.

    • natteringnic
      on September 17, 2012
      natteringnic says:

      …*taps nails on desk* Still waiting for the closet-organizing housecall. :)

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