Vlogging will allow me to share my CMT experience in a way that words and photos cannot.
It is great because it will illustrate better how CMT affects ME and give my fellow CMTers a better idea of what my precise challenges are and how it relates to theirs.
My first topic? Running with CMT.
Running is always the first thing that comes to mind when people ask me how CMT affects me. As a kid, there is nothing I wished for more than the ability to run. Every spring we had to run around the track behind the school. It was mortifying. I was always last. And not just a little last…but dead last. I would get knots in my stomach every time the teacher would shout out”OK everyone, let’s go to the track.” I cried many tears because I just could. not. get. my.legs.to.move.fast.
As a Mom, my inability to run is a safety concern. I can’t chase a kid who darts off the front lawn into the street. From the time Pud was an infant, we would tell him “Mommy can’t run.” We are doing the same for Paddy.
So here it is: My first CMT Vlog about CMT and running. (And please…be gentle. I’m still breastfeeding and I’m the body type that holds onto weight while still making milk…ack! Oh – and The Pud is recording so excuse the shaky camera work.)
Charcot-Marie-Tooth, Running and Me
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