Bringing our kids to the music 2

“Don’t live your life around the kids – make the kids part of your life.” My hair dude have me this piece of advice when I was pregnant with The Pud. Best piece of parenting advice we’re received. Pud has been everywhere – museums, NHL games, MLB games, White Castle. (OK – White Castle…not our ...

Everybody Poops – AKA, My Colonoscopy 4

In Ontario, the third Monday is designated as “Family Day.” A day dedicated to spending a winter’s day enjoying the people we love the most. Yesterday, I spent preparing for a colonoscopy…because two of the people I love (my Mom and my late Nanny) were struck by colon cancer. The benchmark is a colonoscopy at ...

Positivity is not about being soft, It’s about being smart 6

  “…positivity is not about being soft, It’s about being smart.” I love this line.  (And not just because the remix of NKOTB’s “Games” was so badass it blew my 14 year old brain the first time I saw the video on Muchmusic’s Coca-Cola countdown.) It is pretty much my life’s motto.  Some people quote ...

Zestiest, creamiest, and easiest munchie dip ever!

This is the zestiest, creamiest and – most importantly – easiest dip in the universe. Over the years it has become my trademark “fun dish” I bring to any potluck, hockey night or party. I am often asked for the recipe and no one believes me when I tell them it is just a brick ...

CMT Tricks for CMT Month 2

My Charcot-Marie-Tooth symptoms have been present since toddlerhood. Therefore, I have instinctively developed little “tricks” in my daily life to cope with my limitations. When my CMT Clicks buds and I discussed writing about our little coping mechanisms, it forced me to take a real step back and evaluate my daily routine to figure out ...

The. Door. Is. Locked. 10

The-door-is-locked.   The-door-is-LOCKED.  The-DOOR-IS-locked.  I’ll repeat this phrase, outloud, over and over as I tug on the stationary door handle.   I will pull until my arm is tired and my palm red.  (That’s what he said!) When leaving the house I must ensure that the door is locked. And then I wil get in the car. As ...

The Cosmetics Conundrum (AKA I Miss the Avon Lady) 2

You know who I miss? I miss the Avon Lady. Over the years, my Mom had a few Avon ladies. They were always lovely older women with immaculate grey hair who smelled of either jasmine or lavender. I would always make a point of walking by the living room (the Avon lady was always entertained ...

To Me It May Concern; 6

For my birthday I want the ability to time travel.  But since you can’t buy that off Craigslist…yet…I’ll put on my imagination hat and pretend.  If every birthday “Future Me” could give “Current Me” advice for the year(s) ahead, I would tell myself: August 15, 1977 – Those 2 people who won’t stop staring at ...

Vlog: Balancing Charcot-Marie-Tooth and Sleep with Newborn Pud’s Needs 1

Let me preface this post by saying that this is what worked for us and The Pud.  Trust me when I tell you, every kid is different!  (Paddy was the total opposite.  He loved to eat, gained weight easily and didn’t need that insane “every 3 hour feeding schedule” or formula.)   Every parent has ...

Vlog: Wielding a knife, Charcot-Marie-Tooth Style 1

The hand tremors that affect us CMTers can tricky to deal with – particularly when it comes to food preparation. Here’s a little Vlog where I demonstrate two little foodie “Nic Tricks”.   [kaltura-widget uiconfid="535" entryid="1_6zadig7k" width="400" height="330" addpermission="" editpermission="" /]  

Charcot-Marie-Tooth Vlog #1: Running 5


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My experience doing MamaKat’s Vlog last week gave me a lightbulb moment. Vlogging will allow me to share my CMT experience in a way that words and photos cannot. It is great because it will illustrate better how CMT affects ME and give my fellow CMTers a better idea of what my precise challenges are ...

Gather ’round kids – it is time for “Auntie Nic does Art” 1

I’m babysitting my gorgeous niece E.J.  E.J. is a lucky girl because Craf-T is her Mommy.  E.J.’s life is filled with colouring, crafting and cartooning. I am not crafty.  Or arty.  In can draw two things: The Water Cycle and a pig. E.J. was sitting beside me at the computer desk drawing while I was ...